Conversations about Parkinson's
In preparation for the 4th World Parkinson Congress in Portland in 2016, two highly experienced journalists (who are also living with Parkinson's) survey the landscape of Parkinson's disease research and treatment by interviewing neuroscientists, neurologists, and people with Parkinson's (PwP). These FREE series of 15 thirty-minute podcasts will not only address common questions asked by PwP, but will also serve as a primer on the biomedical research currently underway.
Special Guest: Dr. Sam Frank
That line from a poem by Theodore Roethke describes a common nemesis for Parkinson's patients: sleep. Yet disrupted sleep may also be an early warning sign of the disease. What can sleep tells us about the disease and what can we do to make sleeplessness less a burden for those living with PD?
Special Guest: Dr. Jeff Bronstein
It’s been nearly 200 years since James Parkinson first published his landmark essay about the disease that now bears his name. Yet we still don't full understand its cause. This podcast reviews our changing understanding of what causes Parkinson's and how that may help us find a way to stop disease progression.
14. Patient Perspectives - Available July 5, 2016
In this podcast two leading Parkinson's advocates and educators offer a patient perspective on both research and clinical care. Pam Quinn is a former professional dancer who uses movement training to work with fellow Parkinson's patients around the world. Sara Riggare is an engineer and doctoral student at Karolinska Institute in Stockholm who focuses on using patient perspectives to improve overall care.
15. Previewing Portland: WPC 2016 - Available August 2, 2016
In our final podcast we preview the upcoming 4th World Parkinson Congress by talking with Elizabeth "Eli" Pollard, Executive Director of the WPC and Dr. Serge Przedborski, WPC President and co-chair of the Portland Congress.
Jon Palfreman, PhD, is KEZI Distinguished Professor of Broadcast Journalism at the University of Oregon, USA. Palfreman, the author of BRAIN STORMS: The Race to Unlock the Mysteries of Parkinson’s Disease, (due out in September 2015) is an Emmy, Dupont and Peabody Award-winning journalist, and recipient of the Victor Cohn Prize for Excellence in Medical Writing. He is a three-time winner of the American Association for the Advancement of Science science-writing prize, three-time winner of the National Association of Science Writers "Science-in-Society" Journalism Award and a winner of the Writers Guild Award for best script. In the area of Parkinson's Disease research, Palfreman previously co-authored a book with neuroscientist Bill Langston (LPD co-Editor-in-Chief), The Case of the Frozen Addicts, and produced two NOVA documentaries chronicling the story of the MPTP cases, NOVA: The Case of the Frozen Addict and NOVA: Brain Transplant. He was recently made Social Media Editor of the Journal of Parkinson's Disease. Palfreman was a 2006 Nieman Fellow in Journalism at Harvard University.
Dave Iverson is an independent film producer and veteran journalist. His most recent film is “Capturing Grace”, a feature documentary about a group of dancers with Parkinson’s disease and their unique collaboration with the world renowned Mark Morris Dance Group. The film won the Audience Favorite Award at the 2014 Mill Valley Film Festival, the People’s Choice Award at the 2014 Starz Denver Film Festival and the Audience Choice Award at the 2015 Sedona International Film Festival. It will be broadcast by local PBS stations beginning in June, 2015. Iverson was also the writer, correspondent and co-producer/director of the 2009 PBS Frontline documentary “My Father, My Brother and Me” which explored his family’s battle with Parkinson’s as well as the scientific, ethical and political issues raised by this condition. An earlier documentary of Iverson’s for PBS, “The Thirty Second Candidate”, won a National Emmy Award in 1999.
Iverson has served as a radio host at San Francisco’s NPR affiliate KQED and as a special correspondent for the PBS NewsHour. In addition to his film and broadcast work, Iverson now serves as Contributing Editor for the Michael J. Fox Foundation for Parkinson’s Research and is a founding member of the foundation’s Patient Council.