|Advocates for Parkinson Committee|
Co-Chair: Jean Burns
Co-Chair: Alice Templin
Jin Kyoung Choae
Jean Burns (USA)
Alice Templin (Canada)
Jin Kyoung Choae (South Korea)
Patricia (Pat) Davies (USA) has organized large international conferences for over 35 years. In 1991 she was recruited from her home country, the UK, for a position with the World Bank and the International Monetary Fund in Washington DC, where for 16 years she managed the Bank/Fund joint Annual and Spring Meetings.
Pat retired in 2007, and in 2009 she was diagnosed with Parkinson’s Disease. In 2010 she attended the World Parkinson Congress in Glasgow and was inspired to offer her services to assist. She is now a member of the WPC Steering Committee, and Advocates for Parkinson Committee, and is also Secretary of the Board of the World Parkinson Coalition.
Pat believes that staying as busy as possible is, for her, the best way of dealing with Parkinson’s Disease, and, among other things, she is very involved in working with homeless people in Washington DC. She is currently President of the Board of Georgetown Ministry Center, a day center for the homeless which is open 365 days a year and provides shower and laundry facilities, computers and medical and psychiatric help, as well as food and other kinds of support. She also helps to organize a winter shelter for the homeless, as well as a year-round Saturday night supper program.
Pat is a PDF Parkinson’s Research Advocate, and a member of a Parkinson’s support group. She enjoys working with the newly diagnosed, as well as people with Parkinson’s who live alone.
Sonia Guiterrez (Costa Rica)
Tim Hague (Canada)
Anders Leines (Norway)
Timo Montonen (Finland) was born 1957 in Helsinki, the capital of Finland, and there he has lived almost all his life. He has been married twice; he has two daughters and two granddaughters. So, he’s used to live with females and also work with them in educational field. He is working as a planning officer at the University of Helsinki in a writing program. Timo is also an author of eight books. His latest book, published by the Finnish Parkinson Association (FPA) 2014, is titled (in English) “I have Parkinson’s and I’m proud of it”. There is a certain idea in that provocative title, or, should one say, several ideas…
Timo was diagnosed 2005 at the age of 48. Since 2007 he has done voluntary work in the Parkinson community of Finland, locally, nationally and in internet, and also represented FPA at a workshop and annual meeting of European Parkinson’s Disease Association (EPDA) in London 2011 and at the 3rd World Parkinson Congress (WPC) in Montreal 2013.
The way of this Parkinson’s activist has, as we see, gone from FPA via EPDA to WPC! What’s next? As a writer Timo has already imagined intergalactic Parkinson activity. Is there Parkinson’s disease in other parts of the universe? We don’t know; so it’s better to concentrate on those challenges we have to face in our everyday life. Timo is especially interested in the wellbeing of people with Parkinson’s at working age and the empowering force of writing blog, diary, poems, short stories and novels, not to forget other arts as dancing, singing, acting and painting.
Timo is not only hyper active and multi-talented (in his own mind), he is also a man of sitcom and improvisation. So, be ready. You never know what plans he has got for you. Be in Portland, Oregon (USA) at WPC 2016 and see in your own eyes and hear with your own ears, not to mention the friendly touch of creative hand.
Linda Morgan (USA) was diagnosed with Parkinson’s disease more than eight years ago in 2005. Within 35 days of diagnosis she had researched and found the first clinical trial in which she was to participate. Since then she has participated over 25 trials varying from a blood draw and exam to a week long inpatient trial at NIH. “By participating I feel that I have helped the Parkinson’s community in my own small way. In addition, it has given me a sense of empowerment, a sense of ‘control’ over this uncontrollable, progressive, and debilitating disease,” states Linda. She is a graduate of the Parkinson’s disease Foundation’s inaugural Learning Institute of 2008, now PAIR.
As an advocate for the participation in clinical trials she has spoken on the subject at regional and national as well as local Parkinson’s disease venues. On the same subject, Linda has been quoted in Time Magazine as well as the Wall Street Journal. She has served on the Parkinson’s Association of the Carolinas Board of Directors, on the program committee of the World Parkinson Congress held in Montreal and is actively involved in several non-profit organizations. Currently, she is on the Program Committee of the Parkinson’s Disease Southern Summit 2014 to be held in November of 2014 in Upstate SC; a member of the Persons with Parkinson’s Advisory Committee (PPAC) for the Parkinson’s Disease Foundation; on the Scientific Review committee of PSG (Parkinson’s Study Group); trained as an FDA Patient Representative; active with PCORI including the role of Reviewer; and serving on the Patient Advocacy Group of WPC 2016.
Linda is now speaking out about the patient involvement in the entire Clinical Trial Process not only as a ‘subject’.
Linda Morgan is a registered pharmacist currently working as a Remote Pharmacist covering 4 hospitals in Western NC. She graduated with a BS in Pharmacy from UNC-Chapel Hill and later earned an MBA from Western Carolina University.
Margaret Turner (Canada)
Don Turner (Canada)
Marilyn Veomett (USA)
George Veomett (USA)