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Care Partner Virtual Panels
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At our triennial World Parkinson Congresses, people with Parkinson’s and care partners (CPs) play an active role in the program design. One area that is informed by care partners at each WPC is the Care Partner Lounge. The Lounge is an active space designed for CPs to come together to learn, connect, relax and be inspired. After the 5th World Parkinson Congress in 2019, we received feedback from care partners globally who indicated they wished they could be a part of the Care Partner Lounge, but due to travel inhibitions they could not partake in the activities. It was this feedback that inspired us to survey the community. Based on the feedback that came back to us from the CPs we surveyed, we decided to take the Care Partner Lounge virtual.

The topics below were chosen by the CPs we surveyed and fine-tuned by the planning committee*. Each virtual panel includes experts in the space as well as a couple that has agreed to discuss how they address the topic as hand. We call them our real experts. Panels are designed to be accessible and meaningful with tips and advice from people with many years of experience in the Parkinson’s space. Viewers may submit questions directly to the panelists during the live program. All programs will be archived through June 2022.
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This program is made possible with support from US WorldMeds and Adamas Pharmaceuticals.

 

 


Medication Management and the Role of the Care Partner

Date: Aired on April 28, 2020    

Moderator: Julie Carter, RN, MN, ANP, Professor Emerita, Oregon Health & Science University

Medication management: What you should know as a care partner
Panelist: Sneha Mantri, MD MS, Duke University Movement Disorders Center

Tips and tricks for better communication about medication. What you need to know to address this topic with your loved one and health care providers 
Panelist
: Lisa Mann, RN, BSN, MA, OHSU Parkinson Center

Care Partner & Person with Parkinson’s, the “real experts”, share their story.
Panelists
: Kat Hill, RN, CNM, NP & Ken Hill, MS

  


Mental Health & Parkinson's

Date: Thursday, July 9, 2020    
Time:
3PM ET/ 12PM PT

Moderator: Julie Carter, RN, MN, ANP, Professor Emerita, Oregon Health & Science University

Learn the facts about mental health and Parkinson’s
Panelist
: Gregory Pontone, MD, MHS, Johns Hopkins University School of Medicine

Tips and tricks for managing mental health issues 
Panelist
: Allison Marie Allen*, MSW, LCSW, Duke University Medical Center

Personal experience from the “real experts”, star care partner to tell his/her story. 
Panelists
: Karen Sauer and Fred Winston


Cognition, Caring, and Coping

Date: Monday, September 14, 2020   
Time:
3-4PM ET/ 12-1PM PT

Moderator: Julie Carter, RN, MN, ANP, Professor Emerita, Oregon Health & Science University

Cognition and Parkinson’s: What role does the care partner play?
Panelist: Jenna Iseringhausen* BSN, RN, NYU Langone Marlene and Paolo Fresco Institute for Parkinson's and Movement Disorders

How does cognition impact the care partner and what are some tips and tricks to use when cognition is a challenge?
Panelist: Elaine Book*, MSW, University of British Columbia

Personal experience from the “real experts” talking about and working through cognitive issues and Parkinson’s.
Panelists: Hyam Kramer and Tom Gunnoud


Wellness: Approaches Beyond Medication

Date: Wednesday, December 9, 2020     
Time:
3-4PM ET/ 12-1PM PT

Moderator: Julie Carter, RN, MN, ANP, Professor Emerita, Oregon Health & Science University

Learn the facts: Creative ways to support wellness in the PWP
Panelist: Silke Cresswell, MD, FRCPC, University of British Columbia

How does the topic of wellness impact the care partner? What role does the care partner play in the wellness of the person with PD they care for?
Panelist: Lissa Kapust*, LICSW, Beth Israel Deaconesss Medical Center

Personal experience from the “real experts”, star care partner and PwP tell their story.
Panelists: Leslie* and Steve Peters


* Denotes Planning Committee member

 

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